Are Systemic Design Methods Excluding People with Learning Disabilities? -96

Bookmark

Demystifying complexity in systems thinking methods

Irma Cecilia Landa-Avila, Satheesh Gangadharan, Sarah Rabbitte, Amy Wilkins, Michelle O’Reilly, Neil Sinclair, Chris Knifton, Panagiotis Balatsoukas, Rohit Shankar, and Gyuchan Thomas Jun

This presentation aims to present an inclusive research protocol to enable the participation of people with learning disabilities to codesign artificial intelligence healthcare systems scenarios and reflect on how some groups of populations have been excluded while participatory systems thinking approaches/methods have been conceptualised and applied.

A succinct review of systems thinking methods (i.e., systems mapping, ecosystems scenarios and patients’ journeys) will be presented and reflect on how inclusive they are. Next, the protocol followed on an ongoing project that explores the integration of artificial intelligence for codesigning a joined-up healthcare model for people with learning disabilities will be presented. This protocol describes a methodology that introduces and adjusts different systems thinking methods to meet the needs of people with learning disabilities to become active in participatory sessions with multiple stakeholders (e.g., health and social care professionals, policymakers and tech innovators, among others). The presentation will emphasise the ethical considerations for recruitment and consent, adjustments for reducing the cognitive workload of methods, environmental aspects to ensure participants’ wellbeing, follow-up actions for long-term engagement and meaningful contributions and building up learnings to increase ‘complexity’ and independence.

The presentation will conclude with a reflection on how these adjustments and considerations could be adopted in other approaches, methods and techniques in order to demystify the complexity of systems thinking methods. This inclusive perspective aims to encourage the integration of diverse actors, especially those that have remained excluded from the mainstream methodological approaches to achieve genuine participation within a systems thinking approach.

Keywords: inclusive systemic design, multistakeholder participation, healthcare scenarios, artificial intelligence, people with learning disabilities

Pre-proceedings drafts are available for RSD11 participants to review. The corresponding paper number is at the end of the title. The papers have been peer-reviewed, and the authors have made revisions. Following RSD11, authors will have a final period to revise their work from the feedback received at RSD before the proceedings are formally published.

Posted September 2022

RSDsymposium.org content is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License. This permits anyone to copy and redistribute the material in any medium or form according to the licence terms.

Suggested Citation Format (APA)

Author(s) (20XX). Article title. Proceedings of Relating Systems Thinking and Design (RSDX) Symposium. rsdsymposium.org/LINK.